Mr. Hallock and Weinschreider and everyone at SleepSafe,
My entire family is just overwhelmed with the generosity you have shown to my baby girl. I am not sure how much you know of our story. I think it’s imperative for you to know what we have been through to realize the amount in which you helped us.
Makily was born with Emanuel Syndrome. It’s a genetic condition that I am a carrier for. My husband and I did not know anything was wrong until she was born and on death’s door. Makily suffered terribly the first year of her life and for a long time we didnt think she would see her first birthday. If she did her future was very uncertain and we were basically led to believe she would be NOTHING more than a vegetable. Makily is NOT a vegetable, she can sit up, stand up, giggle, smile, I hope she will walk one day. She loves people and Spongebob and is the most amazing person I have ever known. She overcame so much just in her first year. We are not having anymore biological children because of the risk of bringing another sick baby into the world that would had to suffer like Makily has.
My husband and I have applied for EVERY state funded insurance as a back up for Makily’s health care needs. We have been denied for EVERY SINGLE ONE. We applied for Medicaid and SSI twice. SSI told us to get divorced or give legal custody of Makily to someone else. INSANE. We make about $50k a year and bring home about $35k. With Makily’s therapy being close to $400/week (insurance only covers $2500 a year), all of her medications, equipment, co-pays, hospitilizations, trips to specialists we literally have been hanging on by a string and have gone through much of our savings. It’s laughable to me they think we can afford all of this and that we are too “rich” to get any kind of help.
I tell you all that to tell you this. I am a tired Mommy who has been fighting for Makily for EVERYTHING she has needed for four years. I spend my days on the phone begging and pleading for help. My pride is out the window. It honestly seems like EVERYTHING we try to get or do for Makily is a struggle, fight or argument. When you have gotten to the point you are BEGGING state agencies for help and you are denied, things get very depressing. I have been at the end of my rope and my attitude was suffering. I would wake up angry and that is not the person I ever want to be.
After finding out that my baby was getting her bed yesterday it was like a light switched on. I feel the spring back in my step. I have let the anger and anxiety about her bed go and it’s one less worry I have to have. I know that I don’t have to call the insurance company five times a day begging for answers from someone who really does not care about my kid. That stress disappeared yesterday and I now have peace that my miracle daughter is going to have a comfortable bed that she can sleep in safely.
I will never be able to fully thank you for what you have done for us.
From Makily and her entire extended family,
THANK YOU, THANK YOU, THANK YOU!!!
Sincerely
Patricia Caldwell
Makily’s proud mommy
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To Whom it may concern,
We ordered the Sleep Safe Plus for my son this summer and he has been in it since September. I cannot express how wonderful it has been for him, it was worth every minute of work to get the funding for it and every penny we put in ourselves.
That aside I just heard from a friend of mine that your company is donating a bed to her daughter Makily – I wanted to send along a thank you. I can’t say how awesome this is for them, and how proud it makes me to own one of your beds.
You guys are awesome. Thanks for reminding us that there are good people and good companies out there – when we spend our lives fighting for funding, and fighting insurance, and fighting for what our children need, we often lose sight of the fact that behind all these fights there are people, and a lot of them do care.
Thank you.
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Our son has an adaptive bed and does not sleep very well. Then he tried a SleepSafe Bed. For the very first time in his life he slept all the way through the night two nights in a row. I think the difference was the high see-through sides. It seemed like he felt safer and loved being able to see out.
Written by the mother of a six year old boy with Cerebral Palsy who is non- ambulatory and non-verbal
and has had sleep issues his entire life.
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Hello,
We are very happy with our new Sleep Safe II Plus bed. I wanted to write a testimonial and feel free to add it to your list if you would like.
My husband and I decided on the Sleep Safe II Plus bed for our special needs child. We did quite a bit of research before deciding to pursue this bed. Our little girl has RETT Syndrome (a neurological developmental disorder). We heard from many parents on RETT NET that they have the SLEEP SAFE beds for their little girls. We emailed the families and felt confident that this was the bed for us. We were happy this model came in the full size bed too.
My husband assembled the bed in a few hours. Our daughter (she is 16) came down with a respiratory infection shortly after getting her new bed. This bed helped her breathe more easily by elevating her head. She was able to have her head raised to eat/drink and also watch her favorite DVDs while she recuperated. She is facing back surgery within the next month and this bed is going to help her (and us) tremendously.
Also, the customer service we received was exceptional. And the bed was delivered earlier than we expected so that made us happy!
Dr. John and Sharon Flanders
Saunderstown, RI
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Hello,
My name is Becky Dornoff and I am an adoptive mom of a number of children with special needs. I have 3 of the SleepSafe Beds, and I just wanted to share how wonderful they are. They look great, are very easy to clean and are very safe for my kids who have cerebral palsy. Thank you for the design of your beds!
Becky Dornoff